Understanding primary sclerosing cholangitis
Gain insight into primary sclerosing cholangitis and discover how The Liver Hope Foundation provides support and resources to those affected.
What is primary sclerosing cholangitis?
Primary sclerosing cholangitis (PSC) is a rare, chronic liver disease. It causes the bile ducts, both inside and outside the liver, to become inflamed, scarred, and narrowed over time. Bile, which is vital for digestion, cannot flow properly when the ducts are damaged. This leads to a buildup that can harm the liver.
Over time, PSC can result in infections, liver scarring (cirrhosis), liver failure, and an increased risk of bile duct cancer. Many people may not show symptoms initially, making early monitoring and medical care crucial for managing complications.
Support for your journey
This page is for individuals living with primary sclerosing cholangitis, those experiencing symptoms and searching for answers, and families or caregivers seeking to understand the condition. We recognize that you may feel overwhelmed, scared, or uncertain about the future.
After reading, we want you to feel informed, supported, and less alone. We encourage you to seek medical care, learn more about treatment options, connect with The Liver Hope Foundation for resources, and share this information with others.
How we can help
The Liver Hope Foundation assists individuals and families affected by primary sclerosing cholangitis by providing education, support, and practical resources. Our offerings include easy-to-understand information about symptoms, diagnosis, treatment options, and liver transplants.
We offer emotional support through support groups or peer communities, help in finding specialists and liver care centers, and resources for transportation or financial assistance for appointments and treatment. Additionally, we provide nutrition and wellness guidance and advocate to raise awareness, helping people feel less alone in their journey.
You are not alone
Primary sclerosing cholangitis is a serious but manageable condition. Early medical care, ongoing monitoring, and support can make a meaningful difference. The Liver Hope Foundation is here to provide education, resources, and hope, ensuring no one faces PSC alone.