Focal segmental glomerulosclerosis (FSGS)
FSGS is a kidney condition that causes scarring in some of the kidneys’ filtering units. If you are managing FSGS alongside liver disease or transplant-related care, The Liver Hope Foundation in Henderson, Nevada, is here with compassionate, plain-language education and navigation support. We do not diagnose or treat FSGS, but we can help you prepare for specialist conversations and feel less alone.
Support for your connected health journey
FSGS requires specialist-led care from a nephrologist. Kidney function, medication safety, fluid balance, and care coordination can be especially important when liver disease or transplant care is also part of your health plan. Explore non-clinical support designed for patients and caregivers.
Understand FSGS
Find clear information about FSGS, including possible signs such as protein in the urine, swelling, high blood pressure, and declining kidney function. Bring questions to a nephrologist for guidance tailored to you.
Prepare for appointments
Use practical question checklists for kidney, liver, and transplant visits. Ask your care team about urine protein, kidney-function tests, blood pressure, medication safety, and how each condition affects your care plan.
Connect to resources
Receive emotional support, help navigating complex health information, and connections to appropriate nephrology, liver, transplant, and community resources for you and your caregiver.
You do not have to manage FSGS alone
An FSGS diagnosis can feel overwhelming, especially when liver disease or transplant care is involved. Take one step at a time: keep follow-up visits, write down your questions, and work with a coordinated clinical team. Contact your nephrology, liver, or transplant team promptly if you have new or worsening symptoms. Do not start, stop, or change medications, supplements, or restrictive diets without their guidance.
Why coordinated care matters
FSGS is primarily a kidney condition, not a typical liver disease. However, when it occurs alongside liver disease or transplant-related care, the health plan may involve shared concerns about kidney monitoring, fluid balance, and medication safety. Tell each member of your care team about your full medical history and the medicines, vitamins, and supplements you use. A nephrologist can assess the likely cause of FSGS and recommend appropriate treatment and monitoring.
Education and support, not medical treatment
The Liver Hope Foundation provides non-clinical education, patient and caregiver support, practical guidance, and referrals to helpful resources. We do not provide medical consultations, diagnose or treat FSGS, prescribe medication or diets, or sell condition-specific products. Join our support community to build confidence for your next conversation with your kidney, liver, or transplant specialist.
