Understanding primary sclerosing cholangitis (PSC)
You are not alone in your journey with primary sclerosing cholangitis. Explore how The Liver Hope Foundation offers education, support, and hope.
What is primary sclerosing cholangitis (PSC)?
Primary sclerosing cholangitis (PSC) is a rare chronic liver disease where bile ducts become inflamed and scarred, hindering proper bile flow. Over time, this can lead to liver damage, fibrosis, cirrhosis, and, in some cases, liver failure. Individuals with PSC face challenges such as managing fatigue and itching, monitoring for complications, coping with the uncertainty of disease progression, and attending regular medical appointments. Despite these difficulties, ongoing medical care, education, and support can significantly help manage PSC and maintain a good quality of life.
Support for your PSC journey
The Liver Hope Foundation offers comprehensive support for individuals and families affected by primary sclerosing cholangitis (PSC). We provide easy-to-understand educational resources, facilitate support groups, offer information for caregivers, and guide nutrition and wellness. Our educational webinars, healthcare navigation resources, and updates on research and treatment options are designed to help you feel informed, supported, and hopeful every step of the way.
Your next steps with PSC
After visiting this page, we encourage you to work closely with your healthcare provider, continue to learn about primary sclerosing cholangitis, and connect with The Liver Hope Foundation's educational resources and supportive community. Our goal is for everyone to leave feeling informed, supported, and hopeful.
Remember this: Primary sclerosing cholangitis is a serious but manageable condition, and you do not have to face it alone. The Liver Hope Foundation is here to provide trusted education, compassionate support, practical resources, and hope for every step of your journey.